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AutismExPlainedTeachAble2021

Page history last edited by jerry 2 years, 7 months ago

 

AutismExPlainedTeachAble2021

from

SituationalAssessmentTemplate2017

 


 

Introduction/Definition/etc

 

AutismExPlainedTeachAbleCon2020

another year....

AutismExPlained is the Summit

TeachAble.com is the software they run it on.

Not YouTube, Not Zoom,

so some issues there too.

Mostly can't screen save

without going out of little viewer,

repeatedly.  Trying to get transcript

like things said, record of it to write

this and perhaps help remember,

AccessAbility remember...

 

Body

 

Original Text

 

Not sure why i'm doing this,

but another year of

AutismExPlainedTeachAbleCon2020 .

 

Some issues with it,

free to register and view,

which is good,

but limited time,

2 days only to view

the day's lectures/interviews,

and then disappears,

or can't get in, unless you pay,

so sort of a

CrippleWare

(sadly pun intended),

many disabled have extra time on tests,

exams, but this is

Pay to Play

for being disabled, and while they may

need to be paid, to do things like this

even with two sponsors HireUp

(NDIS? Australian health support system?

roughly a Peer Support/Aid network

at the national level? idk just guessing

never really defined, and like the UK

model nationalized health not without it's

problems as well, likely)

and something else,

AList ?

some networking and software for

kids/teen, which isn't in USA

but hoping we will contribute

to it to make it international,

still a rather annoying

way to be...

 

It's a summit not a Con(ference),

some introductory stuff,

going towards sales

of the paid product,

repeatedly...

benefits of online videos

time shifting

world wide,

can view in their time.

 

 

DrawBacks UnStated

 

Many listed on this page

would be good to collect them

someplace like here...

But exercise left for the reader/

viewer, for now...

Like many Con, the short name

for conferences, but the catch

of what they are selling you,

and why you might not want

to buy that, how they tricked you

into spending so much money/

time/personal/work information

etc...

 

Day1 The Human Side of Autism

 

Losing interest quickly,

partially because it seems i've seen

this before, recycled from last year?

and/or just introductory,

Two speakers/ presenters founders

of AutismExplained

 

Paul

(co)founder of Autism ExPlained

(CamelCase Mine) (hosting)

He's late diagnosed at 30

formerly an engineer in aerospace

 

Shannon

(co)founder of AutismExPlained

A mother of an autistic boy,

and likely going into the field

 

diagnosis

what it means,

 

summed up, better by others?

"If you've met one Autistic

you've met one autistic",

Autism/autistics doesn't generalize

very well compared to other diagnoses.

Part of the diagnoses is that the people

are so different, think eccentricities

on steroids?  Geeks, Freaks and Asbergers,

(sp? p or Burgers, burgers funnier)

a book title, but exponential growth

in oddity?  not that all odd is bad,

but teens and others conformity

fitting in, etc seems more important

then, iirc.  That duplicitous (sp?) fit

in or fail?  Herding? Not for immunity

like PanDemic resistance, but

surviving mandatory institutionalization

known commonly as school,

compulsory (sp?) education...

 

A lot of the first video is on

diagnosis, labeling and limitations

of

the medical model

which they

seem to accept unquestioningly

as good and valid,

not any of the controversy/

drawbacks of paternalistic (sp?)

Doctor Knows Best,

not Patient/

so no real Survivors

(harmed by systemic "care")

just supposedly happy patients,

no ExPatients (basically

never again),

like with mental health,

which DSM 4 and 5 mentioned

some differences in Autism Spectrum

disorder,

Aspergers (sp? leaving it)

into the Spectrum,

social

and repetitive

limited interests

sensory profile

(view it if you want,

she tucks some into the other,

iirc)

 

One example she gave 

is an adult oriented lunch

and the mother learns others

techniques for doing things

with their autistic kids,

ordered 5 glasses

and 3 water bottle(s)

and the kid was intent

on making / "decanting"

different perhaps like Towers of Hanoi,

i guess, he might have made sounds

like running damp finger over edge

making music / sound/ noise/

as some might

and could have played with a

smart device including a microphone,

check the frequency/ tone,

and adjusted accordingly,

and a set of musical instruments,

but maybe too young for that?

What situation/environment

  is typically regulated to

crayons and drawing on

disposable/ takeable (sp?)

fridgeArt (sp?),

paper placemats (sp?),

 

Most videos are 40 or so minute

interview/lecture,

starting to feel like the poor kid

at the restaurant table

being talked over and about

though only one of the two

are diagnosed, parents

of and teachers of,

carers, paid and/or volunteer

have perhaps the opposite

viewpoint  of a difficulty/

burden, and how to support

instead of self supporting,

self amusing, and self

care, orientation typical

perhaps of a Peer based

approach...

 

So all rather dry stuff,

in an academic like lecture/

interview format,

only online interaction,

if you'd call it that,

is the comments/

supposedly praise you are

to put out, on the FaceBook

and daily video page(s)

to be entered to win

a coaching session with Paul,

and /or other perks...

 

Sensory Profiles

Another video, only partially watched,

iirc, was an athlete/ coach

on the spectrum,

who plays footie,

football/ rugby?

and fairly insensitive to pain,

SELF HARM ALERT for 50 seconds

a visual put up about it,

but not the usual cutting,

breaks bones/ dislocates/

pulls out a tooth?

so goes rough/ hard

while the soft pressure,

water drying/ getting wet,

like the kid in the first video,

fine in the water, getting there

and out, but the sensation in is ok,

while wearing jeans were

finally a part / short time success,

shorts, even in winter time,

and some other stuff, a high

energy swivel chair girl in a t shirt

athletic and touch, but talking

about sensitivities, and coping

with various things,

while at the same time one of the

view out on the spectrum perhaps

at that level of competition, afaict...

Crocs, a foot/shoe like product,

kind of plastic clog, mule,

slip on shoe

and other Australian terms

likely derived from English

so some translation like PBS

tries to do may be in order,

some may figure out later,

others may have to pause,

go look up, etc, or just let

it slide which isn't really an

Autie concept, afaict...

 

ID (Intellectual DisAbility) (& _Autism?)

put off by the speaker's glossy

photo and description,

later find he's not as arrogant

as the appearance makes him,

though some accomplishments,

trust, and buys himself an Mercedes,

while getting supports, volunteers

at the library, bullying boss there

got fired/ changed,

other work MuddyPuddles?

a disability social center, afaict,

from later conversation and

a lookup of link provided

in deception, and some other

stuff, i didn't look up, but took

a break from listening, viewing

and got back to finishing this video...

Seemed after a while what  a carer

would be expected to interact with,

and given a HireUp sponsoring

organization, maybe built in training

viewing these videos like a case study

for care givers, thinking how you

would/ wouldn't support someone

with these characteristics,

but he doesn't get into getting upset,

while talking of sensory room,

more trophy case, but some other things,

afaict, living on his own,

owns the home, instead of group home,

left from deceased parents, afaict.

Traveled internationally to conference(s)

inspirational, but doesn't understand

some things, Easy language easy read,

and some help learning new things,

reminders, some home care,

checking on things, has pet(s),

livestock? gerbils/ chickens?

Not a bad life for a disabled person,

not the sweatshop typical of

ID/MR, but not in the big city,

some other supports in more rural/

suburban parts of NSW ( NewSouthWales?)

or similar, IDK Australia, but

starting to learn some from this

again and SailingTubers2021

SVLaVagaBlonde2021

and maybe Kiwi

GoneWithTheWynns2021

which i'm boycotting since

deleted my comments, a Web2.0

and likely YouTube terms of service

violation besides blatantly (sp?)

drinkers and on camera too...

Influencers (sp? flagged but correct,

add to dictionary?) trying to get around

the advertising, marketing

"product placement" along the

Thanks for Smoking type techniques...

But i digress...

 

DisAbility

Grace Thompson

(i'm  like name iimpaired,

kinda like face blindness,

so live with it, look it up

if it matters to you)?

a hospital bed/ chair ridden

young person, mostly getting

what she needs, advocating

for self, in a  system that seems

a bit off, describing a mental health

encounter that was reported,

attitude and trying to force

the phone, and walking/ standing

while likely progressive physical illness(es),

never really stated, but went to a liquid diet,

understated problems, masking

and on pain medication,

doesn't seem to be Fragile X,

where bones are brittle, but

wheel chair (an Aussie chair,

as from Australia,

not sure where she is...)

Stopped watching this part way

and got back to it as well...

Exclusion vs. Inclusion

she gave a very practical

example, which she states

better than i can remember,

so if you see the video

might recognize it when it happens,

anyways, more there than meets the eye,

as some might say, young and in charge,

but not too bossy about it,

Personal Assistant, like HollyWood stars

may have, and Phones: NO!

and why, have to see the speaker,

Video calls OK for her, emails,

text, and uses a text parent(s)

and call them, forces to get

and look at the phone

usually an emergency type situation,

and going independent, at 18 or so,

so separating as well,

UN Human Rights definition

and disAbility as a right,

some literal rigid thinking,

but using it well, afaict.

Some pandemic and stuck in,

energy level of activity

15hours/ week,

Maximum, and wiped out talking

some can talk, think does it once

just doesn't want too, but the energy

it expends to do that, and talking

though personal care assistants/

formerly parent(s), as speaking to her,

someone to handle this

which she can't for one reason or another,

melt down like levels of stress

and likely other stuff, afaict,

some privilege seen,

but disability and white girl stuff,

though likely medically necessary,

living some surviving with multiple

illnesses, physical while focused

on the invisible and interactions/

synergistic in a bad way,

like drug interactions, compounding

and potentially lethally, afaict.

My off the cuff take on it,

others likely have other opinions

on it, if you view it,

see what you think

preferably before reading this,

oops, too late...

 

Some emergency room encounters

mentioned, and hope to stay out

of there A&E? a hospital

there? children's ward, as doctors

were from there, but now an adult

so between age chasm problems...

as well as wouldn't go in

to a noisy smell, non caring environment

if didn't have to, symptoms ignored,

(like a lot of MH negated by labels

already received)

and back and forth/

aka revolving door/ frequent flyers...

 

SomeThingMissingAnotherVideo?

Seems like might be another one

forgetting somewhere in around here

or before?

 

NonVerbal Panel

having tried

CyberBullying2020

and mostly ignored

i've known what if feels

like to be further marginalized

by communication

medium defining who/ what you

are and others rejecting

because of that difference,

BlendedHyBridMeetings2021

only some relay / speak out,

and automated like OLPC

OLPCUpdateSugarLabsOnRPi4in2021

Speak mechanical voice

being called noise,

AutScape2020

AutScape2021

perhaps reading out

AutScape2020LightningTalk.txt

and punting on

SomeAutScape2021FeedBack.Notes.G90.HP.txt

as expecting a "talk"

and just read the RTFM

read the fine material/manual

and generalize and other

approaches, to inclusion,

bullying/ grandstanding/

etc...

Anyways saw later

Non Speaking

not Non Verbal is the terminology

some prefer, not sure what's behind

that, but might be worth learning about,

Speak means more to some than

Verbal, (implies action, more difficult

word, and who/what is speaking

making sound, idk, WAGuesses

(WA=Wild Arse/Ass)

 

 

Day2 Parenting & Kids

 

Had some personal things to do,

by a deadline, so likely missed this

entire day?

as Sunday 1900p start,

their Monday in Aussie +10h time zone,

so 48h viewing time, and lost a day,

going out to get stuff, had to

before gone, and inclusive day,

but got stuff, more on that likely later,

unrelated other than interrupting this,

and AttemptedMurderByInspections2019

Inspectionz2018

likely happened without notice,

come back from something else

and someone(s) been in my apartment

says i passed/ conflicting with

does the building first, on the bottom

of the pile, and asks for money,

claiming joking and likely caught

at it, front desk staff seems to have

been spilling coffee in my fridge door,

without formal written notice inspections

designed to FAIL while verbally saying

otherwise, and likely a BIG ProBlemo...

 

What a trip, lose housing from watching

a con/summit, while doing something

something stolen from me,

look this way, they take everything

from you, self respect, (would think it's

inhernet (sp?) self worth,

but yet another bandit (masked)

cancel culture attack on

everyone/ thing else,

for Money$...

Like Concentration Camps:

And when the come for you?

 

 

Day3 Teens

 

Started already, on TuesDay Night 1900p

here (EDT = GMT -4 or 5  DayLightSavingsDiff)

so will see, if Day 2 still available?

or lost it entirely going out for hours

and repeated problems with propped door

smoker and belligerent (sp?) at that,

then BlueShirt  Maintenance

SuperVisor? menacing

on the way back in...

 

Day4

 

The clock marches on,

ready or not,

here it comes,

it's a Terminator,

and you're it's kill...

 

 

Day5

 

Whew clock ran out,

YEAH , No More School,

Alice Coopers, schools out for

summer, schools out for ever!

Yippie!

 

Now what do it do?

Summer's(/now Fall) boring and hot...

Well rainy here, on ThursDay

every am)

 

 

 

Modified Text

 

What's Missing?

 

Live Interaction

 

personal interest

been there, done that,

not sure much is different,

only thing changed

seems to be signing off each

video, doesn't sa y

well, we'll leave it/ that there

or similar...

Running himself as a

Script for each interview

some standardization

admirable, but still kinda

mechanical, (an engineer/

& autie

what does one expect?)

 

What Can Be Found?

 

just rather dry recorded material

could be an audio book

for that matter, as mostly

verbal, very little visual,

talking to slides,

and other interactive

type stuff...

But yeah, there's more,

you can buy audio only,

but co$t$

Wait there's more...

More $ale$...

Getting to be like late night TV watching...

 

What Can Not Be Found?

 

Visuals, besides TalkingHeads

and some gestures,

Aussie phrases, somewhat

English/ England/ British

but also not

Down Under...

 

How To Analyze?

 

Lenses

 

Noob

Might be good introductory

if haven't been to say

Autreat2010PoorPitifulMeAndTheTreatmentsIRantOn

Autreat2010Foods

AutieCultureAndReentryIntoNormalSociety

Autreat2011

Autreat2012

SomeGoodThingsAboutAutreat

AutismLinks

 

JerryNewPort Mozart&TheWhale premiere

(lost on PBWorks reclaimed unedited/updated

and deleted by system, remember backing up,

oops, one of two at least C&O Canal Boat Tour

and Love/ ValentinesDay CELT)

WretchesAndJabberersMovie2011

even

AutScape2020

AutScape2021

other book sale like events

lookmeintheeyemylifewithaspergersByJohnElderRobison

 

or any (local?) support groups

and met other people with

a diagnosis, if you have one

or not...

Not as zoo exhibits but as people,

with and without differences...

It's not all ForrestGump,

you know,

Momma always said,

Life is Like a box of chocolates,

shrimp

while i remember the Sarg

Apple Stock and the Storm(s)

a lot too, besides Jenny

and his Mom, Forrest a

KKK son and VietNam

protesting, mic went out,

censoring, etc

Key Moments in World History

sort of KilRoy was here type

stuff, afaict/imnsho...

 

 

Kids

This is Not really for kids,

afaict

but parents, teachers,

and care givers,

Oddly would it benefit

kids to know what's ahead?

Get that (forbidden parental knowledge?)

If you can figure out

MainStream v. Special Ed,

maybe informed consent,

and all these things decided

for you, effecting your whole life,

a Label, another?

Start with Kid, little person,

and it may be worse from there,

afaict...

but you're bright,

in some ways, right?

so you can handle it?

Or not?

Who knows, the future

isn't written yet,

hasn't happened yet,

but we have to predict

from our limited knowledge,

or maybe more, never know,

seat of the pants,

guesses, some informed

some not, might help if from

someone with the diagnosis?

or not? Stay Away, bad example,

and danger WillRobinSon

(yeah boring old cardboad like robot

now extinct/ deprecated/ passe

..._JarGoneVoCabTestHere_)

 

Dis/Diss/Dys/Hiss, etc

With three main silos of

categories of

Mental Health

 Anxiety

  Obsessive Compulsive DisOrder (OCD)

  PostTraumaticStressDisorder (PTSD)

 Mood/Affective (sp? think correct)

   Depression/ Mania

   BiPolar/ formerly ManicDepression

 Schizophrenia

 Personality DisOrders

   BorderLine

   Narcissistic (sp?)

   Histrionic (sp?)

   Avoidant

   SchizoTypal / Schizoid (sp?)

   Paranoid

   etc

  (alphabetize above?)

 

Substance Abuse

 want fries with that drink/drug/

unwanted behaviors?

 

Intellectual Disabilities ID formerly

Mental Retardation (MR)

thought the R word has come out of fashion

not surprisingly as some very advanced

some ways, intellectually, but maybe not socially...

Similarly some other name for a mixed

Gifted Talented, but barely functioning others,

which i've forgotten, and likely remember later,

but putting up here, will see...

(IdiotSavant) the first is an offensive term now

 

GeneralPublic

Mostly probably only hear of many

of these things if someone

like Durst, or similar makes the news

as violent, and use diagnosis

as an excuse, thereby making

people fearful of diagnoses,

when most are more likely victims

of individuals and society as a whole,

compounded by poverty, hate,

stigma, etc...

 

 

Assumptions

 

learning is good

 

some things you/we/they

may already know

 

packaging stuff for others to understand

is likely including their biases

 

 

Time Limits

 

Aussie Time so +10 hours?

Sunday 1900p Start here

MonDay Morning? there

 

5 days/ Week

2 days viewing time free/Day videos,

otherwise have to buy lifetime access...

 

will go a little while after?

FriDay/SaturDay ending here?

with 48h viewing of Day's Videos

if don't buy the premium/ CrippleWare

PayWall...

Can't afford and odds of winning

dismal?

 

 

Book Data

 

No outlines, notes, class syllabus

or other hard copy accompanying

but some presenters

have had some freebee extras

more likely on the paid,

which i'm not doing

(Can't and don't want to)

If public libraries start DRM

DigitalRightsManagement

like PBS videos

maybe that is a way for others

to fund this, and have some

occasional reference material

access?

Your Tax Dollars, not at Work

making money for other people$

 

ISBN

 

 Bound

 

CopyRight

 

 Pages

index

 

 

Links

 

(Roughly reverse chronological)

 

AutismExPlainedTeachAble2021

 

SomeAutScape2021FeedBack.Notes.G90.HP.txt

 

AutScape2021

 

AutismExPlainedTeachAbleCon2020

 

AutismMedia2020

 

 

AutScape2020LightningTalk.txt

AutScape2020

 

AutieCultureAndReentryIntoNormalSociety

AutismLinks

 

Autreat2012

 

MoreAutreat2011PostProcessing

Autreat2011

 

Autreat2010Foods

Autreat2010PoorPitifulMeAndTheTreatmentsIRantOn

 

/GoFish

other stuff up here likely

might be more your cup of tea,

idk, i'm not you,

you aren't me,

see?

Sadly a Bad Hiku

/EffU?

 

 

Conclusion

 

Summary of experience or similar

 

Signed up for a free con/Summit

and very quickly bored/ don't like/

not doing much of it,

and get on here and write drivel

about it, complaining,

and likely going to put this page,

maybe day / talk sections

in as comments,

if i bother...

 

Bad mood?

not my modality?

or just introductory?

gets better later?

but if don't continue

viewing...

Would never know...

Ignorance is Bliss,

looking for bliss...

 

Self introspection as to why

such a negative reaction to this

stuff? Projecting?

or what?

 

Turned off by the medical

model, very likely...

Likely used to

Not scare off the parents

and teachers and carers,

and other industrialization

like the medical industrial

complex....

 

Missed a Day?

didn't get ahead of it,

then something came up,

and had to go out,

missing maybe a while day

deadline?

 

will see, might be Day 3 starting tonight/

1900p but Day 2 still available,

have overnight to catch up,

but need to get ahead of it,

read/ view ahead, as Gone

is Gone, special price during

event, try before you buy

marketing techniques,

disabled things needed

like transcript, workbook,

etc, seems mean/ cruel

after a while,

but it's Carer/Teacher/Family

focused not

_SomeThingLike_

For Us, By Us

 

Nothing About Us WithOut Us

 

No Autie Left BeHind?

(tm here?)

 

 

20210923 0134a

The trap of being set down a maze

of someone else's making

for their profit motive,

rush, rush, Too Late

So Sorry, you should have bought

this, that or the other,

see we had it on sale for you,

too late, now costs More$

 

If you buy now,

you Save,

(trying to save your life here,

right? or just Sales B$)

 

Thinking critically,

is there any other way?

Possibly lost housing

subsidy (many $hundreds/ month)

While PR would say,

education/ classes/ learning is good,

opportunity looks the other way,

not the boring lecture($)

and likely missed out on living,

died? while someone trying to sell

me their take on a diagnosis?

 

Most people, labeling theory

goes, follow a path,

have a problem,

get a label,

try to learn everything about that label,

find limitations of it,

and try to get rid of it,

it's a crutch,

in may people's view,

and used too much,

and a stigma

and other things,

might have been better

without it in the first place,

afaict,

i haven't had it,

but many others,

and still trying to get

rid of the effects of it,

them/ labels,

STIGMA

Harassment,

 

and rain rain go away,

don't come back some other day?

or similar, very dry world if that is the

case, no water,ever,

some sayings need some

help but it's mother nature,

what are you doing to do?

 

 

Discussion

 

A place for feedback on the page presented

 

What difference does a medical label

make for you?

mean you can/ can not drive?

or have to test out/ get exception(s)?

 

Have relationships?

or complete loner?

about all is those toys/ devices?

 

What other things/ people

interests?

 

How often do you bore people

with something they aren't interested in?

are they just family so used to it?

 

Birds of a Feather?

Flock together?

or just get apart faster

flying?

 

What pacing can you do?

and if the system is set up

to profit by exploiting those

weaknesses/ disAbilities?

BoyCott? Complain?

What?

Just suffer at the ProFessionals?

PRoSumers? Type stuff?

 

 

License

 

Creative Commons Share and Share Alike,

Non Commercial, Non Derivative,

for the whole site's contents

unless otherwise explicitly stated

 

Page History

 

20210923 JerrySpeak

  1. some cleanup
  2. spell checking
  3. and additions
  4. until punting at the end,
  5. causing a downward spiral
  6. of failing to keep up
  7. and likely cruelly set up
  8. based on their profit
  9. motive
  10. buy their service,  Premium
  11. or fall behind,
  12. as like one Grace interviewed
  13. if only have 15 hours/ week
  14. activity and force fed hours of lectures/
  15. video / day, will explode/ collapse/ 
  16. fall/ what word dis she use?
  17. not melt/ drop?
  18. would have to pay to find out,
  19. as that's old, can't view, $PAYWALL$
  20. Done
  21. but still alive, so far
  22. negative spiral based on their $MONEYMODEL$
  23. /EOF$

 

20210921 Jerry

 

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