PolicingTheDream2012
Introduction/Definition/etc
Surprisingly Not a rant about Police forces...
Read on, I guess...
Body
So on these NoVAPeers pages, you will see some of the
original stuff, early stuff on creating drop in centers from the
funding and development side, not all the way from the beginning,
there were people working on it before, many of them named
in here, and likely moved on to other stuff, but with decades of
experience, what happens next?
Was the torch passed on to people who don't want to do it?
What advocacy is happening now?
In a political climate of Republicanism in VA, does the system
get dismantled like in previous Republican administrations have?
Where VMHCA disolved and later restarted as VOCAL ?
What about regionally and locally?
So like with ex Presidents, what happens with the
current president? Move over buddy, it's my turn now?
Or do the former people just die off?
Or gagged, and can't say anything, don't make the
new people's job any harder than it already is?
Just shut up and let them do it?
Mental Health has a long tradition of making people
dependent on their services, despite the ethics of
not fostering dependency, that is what I see the most...
Make more appointments, call your doctor, get
more meds, for life...
Where and when were people getting better in the
traditional and even alternative systems?
And who is sheparding or Policing the original Dream?
People were asked what they wanted,
providers did most of the judging and
only certain people were awarded,
so what happens to others dreams?
It's cruel and inhuman to ask what people
wish for and then not give it to them...
At the very least, it's invasive...
And in such an impoverished community
it can be deadly, don't get people's hopes up,
and false prophets, false dreams, etc...
Plus, it shifted all the responsibility to the
Consumers/ Survivors and ExPatients
so providers weren't responsible for people,
government wasn't responsible for people,
who, then, was?
Like deinstitutionalization, it seems like another
way to use people... While conditions were
bad/ deadly and inhuman in the state hospitals,
once closed, people were homeless and wandering
aimlessly in the streets, without shelter, services,
etc...
We seem to have a similar situation now,
and people are told there are drop in centers,
but where to go during the evening?
The next logical step was housing,
after starting on peer run day programs,
but then the money ran out, the people
who got paid didn't get more for others,
it was a startup type of thing,
and expectation was that people
become self sustaining,
seed money only, and if it works, give
back, but that may not have happened...
I had dreams of people being helped
and myself in the process...
but like physician heal /cure thyself,
it's not really that way, AFAICT,
a surgeon can't anesthetize themselves
and then perform surgery on themselves
while under/ unconsciensious (sp?)...
It's inherently hierarchical based on
time served, AFAICT. People who have
been around longer help those new people,
and then the new people help others when they
come in... In 12 Step programs, it's the 12th
Step, and doing service...
Only the successful do service, or the message
gets dliuted, mutated and lost.
Step 12: Having had a spiritual awakening
as the result of these steps, we tried to carry this message
to _others_ who still suffer and practice these principles
in all our affairs.
OK, so you, the reader, probably didn't do the first 11 Steps,
and you can't two step, I'm powerless, here let me help
you...
Without the inventory, amends, and hope,
it would not work.
Hope and self determination were what was missing,
IMO. People wanted the trips, but not the work,
get out of the provider run Clubhouse model,
and have some freedom, did it work?
What were the consequences? What happened?
People fought, badly. People, friends of mine
died, people's feelings were hurt when they
didn't get what they wanted/ wished for and dreamed
about...
So what is the role of people who were in it
before? Move aside? Die off?
Recently, I'm remembering the loss of my father
on the recent anniversary of his death...
MyFatherPassedAwayLastNight
He had a view on life, that I inherited some
of, rebelled against a lot of it,
and not sure what happens next...
He was for education, got his Ph.D.
I've stopped at Bachelors, and it took
17 years to get that, sure I had interesting
research jobs along the way, but low level,
and eventually ended.
And as disabled, it doesn't make sense for me
to pursue a masters when I can't do the work,
after getting a degree. It's expensive, I don't have
the money, don't do loans anymore, and I can't
decide between tech and clinical stuff,
neither fits right, and the combination doesn't
really exist... I created individualized stuff
to finish up what diverse stuff I had started,
technology rages on, and clinical stuff
starts from an orientation that they
are all knowing without actually experiencing
it, Lived Experience...
Sure the peer movement has changed it some,
but not enough for me...
Peers are the new case managers,
paperwork and gofers, while the professionals/
providers are in charge, AFAICT.
So, if you have a terminal disease (and most
MH is terminal, IMO), let's say cancer,
and survive it, somehow, I'm hypothetically guessing
surgery, radiation, chemo, etc,
do you then do the surgery, radiation, chemo,
etc on the next person?
Not likely... How quickly would someone get
back to work after a terminal illness?
6 months? a year? two years? 5 or 10?
What about AIDS?
It's become more manageable, people say
it's not the death sentence it once was,
but still ultimately fatal, as is life itself.
Diabetes? Type 1 or Type 2?
Type 1 is juvenile, and insulin dependent,
Type 2 is not, and later onset
so maybe manageable with diet and exercise?
and Monitoring?
Overeaters Anonymous, and other ways of
dealing with it... My grandfather was a brittle
diabetic and died when my mom was young,
back in the days of no insulin, and I never met
him... I hear he did great things, Ivy League,
Pro Football when it was just starting out,
the first Pro Football team in Canton, OH.
where the Hall of Fame ended up,
and the team went in. People only know
of the quarterbacks, Joe Theisman,
and stuff, but he was on the line,
still an accomplishment, and a mayor,
of a small town, in the War, etc...
But I was not a good football player,
too skinny, and ended up with an attitude,
"Football: been very, very good to me"
I lost my roots of where I was from,
the redneck, hick from the rural areas
goes to the big city (not my choice,
my parents, and later think it was
probably good for them, not sure for me,
until I went visiting and wonder what
my life would have been like if stayed
rural / small town...)
One is not to speak ill of the dead,
and maybe that is why, they can't defend
themselves, and it is a resentment that
just festers, AFAICT.
What about alcoholism?
Even if sober, someone still has it,
the urge does pushups, they say/
taught when I was training in detox
for CSAC, and gets stronger while sober,
and relapse is usually pretty bad,
like going to drink milk and it ends
up being ETOH, and next you know
it's all over...
Maybe that is why people say stay
around healthy positive people,
so that doesn't get triggered?
(I never liked the word Triggered
as a Depressive, too armament like)
What about Clinical Depression?
Cope with it?
Manage it?
Cure it?
Big Pharma has got the public brainwashed
into thinking you just take meds and that's it, cured.
Not so, for about 30+% of people,
it doesn't work, so what of them?
Meds don't help, keep trying them?
Wait for the next big thing to come out?
and the public thinks that is all it takes,
you must be doing it wrong, if not getting better...
Maybe it was the wrong diagnosis?
Grief, not depression?
Or Bipolar, not Major Depression?
Or ATypical, or just Recurrent?
Complicated. No easy answers,
and usually seems like no help.
Good Writing/ people should be clear,
happy, helpful, and positive?
Oh, and structured. Beginning, Middle and End...
And if you are not? Are you a failure?
Most probably think so. Others, consider
it realism. Play the wise sage and get
hated back. Told you so.
Or seen as arrogant and aloof,
hypocrit, blowhard, ranting unprofeesional blogger,
etc...
What about Heart Disease?
High triglycerides and manage by
diet and exercise?
Get lean and keep the weight down
so less strain on the heart...
Not sure...
Dad taught me some things,
non fat milk, some heart healthy
recipes were discussed, he was
going to write a recipe book
but didn't as far as I can tell...
Years ago, I got a package that
wasn't labelled, and I sent it back,
what was it? from an old girlfriend?
Sending some excess clothes?
or a OLPC new development thing?
or a projector from the RRWG?
Will never know, I don't accept
things, when don't know who they
are from, they might go boom.
But, I do try to give back,
and a lot of this NoVAPeers
is all about, here are some of
my experiences, yours may differ greatly,
but something to think about,
you decide for yourself, if you think
you can fly unaided by airplane,
parachute, hang glider, haven't been
trained, etc, don't be stupid, check
it out with others, learn about it,
make informed choices,
_insert standard advice here_...
And if you see anything obviously
wrong, let people know. They don't
want old fuddy duddies telling them
what to do, most are largely ignored,
out of sight, out of mind, as they say,
how quickly people forget Valentine's
Day, and that was just earlier this month,
and tomorrow the 29th, is just once
every 4 years or so, so that doesn't
happen all that often, a little review
of where we have been, and wondering
where we are going.
Can't help getting older, will only
stay young in pictures, and don't want
pictures of myself, so only in words,
and pictures of others...
http://novapeers.pbworks.com/w/page/10219181/JerrySpaceIdea
Has a legacy, it's the dream, or part of it, and not sure
if any of the 250 or so viewers over the two years learned
anything, there are hackerspaces in NoVA now
and another starting up in Reston, not for MH
specific, that I know of, and certainly not enough
residential for MH/CSX/ ID/ SA, etc,
respite is talked about and webinars and publications,
that was the up and coming thing a few years ago,
old hat now I guess, I'm out of it, only hear a little bit,
and haven't written a retrospective, it will be
6 years next month since the original stuff started
March 4th, 2006? Empowered For A Change,
for small change, we used to joke...
Where are they now?
Heard one was homeless...
Others busy, change of the guard,
and NVRPP changed models,
burned out consumers on no pay,
no say, no dreams, no help,
and on to using other people,
I would guess...
VOCAL grant stuff?
Some changes there?
This season, I'm starting to see plants coming up,
croakuses, or similar, Cherry Blossoms
and other signs of spring life, birds making noise in the
early am, people in shorts, wishing the season
here already, allergy and pollen counts starting,
maybe make it to spring, remembering
I had told my dad, make it to spring and we will
go to his hometown, and he passed before that
happened, I took him, in ashes form to his home
town, and it had changed significantly, so much
so that I would not think he would have liked it,
and while I didn't have a good plan of what to do,
burned out on other stuff, and you can't
just scatter ashes any old place, likely
against the law, human remains have
certain resting spaces, most expensive,
and a lot of pomp and circumstance
(read religion) that goes with it,
ashes to ashes, dust to dust,
as I've heard...
Thanks Dad, I don't think everything
you did was right, but you cared,
a lot more than most I've ever met,
and while drinking was not one of
your best qualities, you did some
good things along the way,
and you are remembered, at least
by me, and happy belated Birthday
too.
Conclusion
Summary of experience or similar
Discussion
A place for feedback on the page presented
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