MyFatherPassedAwayLastNight
Introduction/Definition/etc
After a prolonged fight with heart disease,
and lupus then heart failure,
my father passed away last night.
20100228 7.58 am Jerry
Body
I'm very tired and can't write nor think
very clearly at this point,
but probably will have more
to say about it later, as writing is
part of my self directed therapy,
and I've got plenty of complicated
unresolved grief already about many
other extended family, friends and
community losses.
Some quick system level things,
going to hospice (unlike
Judi Chamberlin's
"My Life As A Hospice Patient" blog)
he preferred to stay in the hospital's
Coronary ICU, despite their intensity
levels and reimbursement issues.
He basically passed as that
transition was being worked
despite his objections and being
unable to talk with shortness of
breath with everything but morphine
for the pain withdrawn at his
request and other more experimental
treatments rejected...
He said to me "not to talk about death",
and while respecting most of his wishes,
I'm unable to take his orders
(or side stepping some of it with
the quibbling that it is in written form,
some of which he has enjoyed
over the past year and half
giving him copies of what I'd
been publishing in StreetSense).
He was with a cardiologist for 20+
years and to my amazement
trusted the doctor who is very
personable, respectful and caring,
even sharing some of his experiences
doing home hospice care within his family
though the doc had many other patients,
a busy practice and many other responsibilities
and that's just in his professional life...
My family will probably be figuring out
what to do. For my anonymity
and privacy though I probably will not do
the regular notices, obituaries, etc despite
my father visiting the CWC on a Thanksgiving
holiday time tour to show what I'd worked on creating,
before resigning in protest
and sharing some of my other consumer
and support activities over the years.
He liked gardening, and we were
planning a fishing trip (though my
preference was biking)
to his home town in rural
wilderness areas to visit
and see how it had changed
over the years since my grandparents
passed away in the early 1990s,
but I was not able to make the trip
before last fall,
and we discussed and planned on
going in spring when driving would
be safer (which some form
of spring is Monday March 1st,
despite snow forecast for today,
and a protracted
winter storm season...)
I had said, "make it to spring and
we will go", but should have dropped
even more things to do a last request
one personal trip, and even considered
getting medical advice and packing
him in the car (somehow propping up his legs
which were filling with fluid that his
heart could not pump even before
blood pressure was low and his
kidneys failing as a result)...
As many father son relationships
and presumably father daughter
and mother daughter, ad nausium, etc
we didn't always agree, fought
about many things even near the end,
but I had no doubt that he loved
and cared for me, it was probably
just arguing about how...
Also at his request, I will not blame
myself, despite the depression
and other things saying I should
have done things differently,
we had talked for decades since
his first heart attack, knowing
each time I saw him, it would likely
be the last, and learned how to
say "I love you", despite his
generational and perhaps cultural
reluctance to show emotions,
even a hug was difficult
despite the pacemaker/
defibrillator implant and
other soreness from lupus
and old age... I couldn't
understand how he could
get such a device implanted
but resist switching word processors
or browsers, but he had his routines,
never really adjusting to a
drastic change, some of the many
hospitals he had been in were
no-gos, respect and other things
lacking...
He had opinions on many things,
was not afraid to speak them,
though generally did not force them
upon others, but was not beyond
griping and ranting about some stuff,
and educationally worked in the field
of public health beyond the Ph.D. level,
had early in his career been a teacher
and in the military including boxing
during the war (which one I'm uncertain
at this moment, he didn't talk about it),
though was not part of the VA medical system,
for some reason we never really discussed,
he used GI benefits to get the Ph.D.,
provide for his family, moved to
where the big cities where jobs/ careers were
he researched epidemiology as
a federal government contractor and
had many conflicts and disappointments
in his retirement, going back for economic
reasons and nearing the end
as his health was failing
and the seemingly cut throat business of contracts
and the upcoming proposal season,
declining health care funding, political
environment, etc...
He had a caring for neighbors
that rural people do for survival,
my recommendations to do so
for the last set of winter storms
probably implemented as an
emergency or political measure,
it's just a matter of course in caring
communities and other people in the community,
involved in lay ministry for
the elderly and sick (plus probably
learned how to care for himself
in the process, keeping himself
very busy, but counseling was
many times too painful for him),
knowing what the treatment and
hospital protocols were
and when they were not being followed...
Some of my first writing was on his
home office typewriter in the den,
I'm banging away some frustration
like a kid playing with his dad's shoes,
but without clear purpose, discipline,
goal nor objective, somewhat just playing
with the mechanics of the device,
hearing the pounding of the keys,
using the correction feature a bit,
though it was a WiteOut (?) /
Liquid Paper based erasing
at the time in the early 1970s,
he kept his belief that I could write,
despite my dyslexia and other diagnoses
being supportive, but was not afraid to edit
and argue with me about
what was too depressing,
inappropriate (though I don't think he
ever used that word with me)
or irrelevant (likewise?), so with that in mind,
I will try keep it short (despite almost
an Irish pub man's long-winded-ness,
technically Welsh...),
and close for the moment,
trying to remember him
as he was earlier, before the illnesses,
he would have probably appreciated
an analogy of boxing, each round
early in his life going well, he is said
to have liked his childhood,
fishing, and a little hunting in the
respectful rural tradition of eat what
you kill, picked up a gardening
tradition from his father,
getting the home canned bread and butter
pickles and fresh produce almost
"a raid the fridge"/pantry/root cellar,
really a take home care package...
His first heart attack was following
having his mother's macaroni and cheese,
eating blueberry pie with a sharp
cheddar cheese (she was diabetic,
so could not really even taste them),
basically a "meat and potatoes"
type culture, but learned to
adjust his diet, getting me to drink
skim milk before it was fashionable,
(other milks later tasted like cream,
my body and tastes adjusted
to the change with time, decades ago),
was working on a heart healthy cookbook,
shared tips and techniques,
but was not beyond enjoying
some of the special beers with a football game,
the usual gift was a case of something
German but popular, or a big gallon of oysters
lastly watching the 2010 Winter Olympics
changing hospital rooms to see
some of more of it, and frequently flirted
with young nurses, leaving a rose
for each (I joked that this wasn't the
Bachelor TV show, his second wife
saying he never had seen it,
likely not a regular show,
the routine of calling some relatives,
"it wasn't a good time", his parents
it was Laurence Welk, Jeopardy,
or a game, or something was playing
perhaps just catching a Bachelor preview ad),
anyway, on to better memories,
getting some rest, and catching
up on other things, as life goes on,
somehow enjoying the irony
of my belated Christmas presents
(he was in the hospital and we never
really got a regular holiday)
but this week taking of
Michael Moore's DVD "Sicko",
Oliver Sacks "Mistaking His
Wife for a Hat" book,
usually preferring to talk to people
despite a life of books and research,
(I described him at one ER as
"Burying himself in books",
adjusting to sending audio tapes
to me as a child from home
when I was in a special camp
to increase my reading skills with
dyslexia back in the early 70s...
'Night Dad...
Somehow, he is in heaven,
with my pet Golden Retrievers,
my grandparents, and other people
he cares about, though I might
join him just to hear the debate
with St. Peter at the Pearly gates...
8-/
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20100228 Jerry
- Jerry created this page to notify some people...
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